STILL ALICE
2015-06-08
书读了3/4的时候去看了电影
个人对书里的几个情节的触动比较深：
1. Alzheimer's disease的三个阶段：The rating scale for each activity ranged from 0 (no problems, same as always) to 3 (severely impaired, totally dependent on others). She scanned down the descriptions next to the 3s and assumed they represented the end stages of this disease, the end of this straight and short road that she’d been suddenly forced onto in a car with no brakes and no steering.
Number 3 was a humiliating list: Must be fed most foods. Has no control over bowel or bladder. Must be given medication by others. Resists efforts of caretaker to clean or groom. No longer works. Home or hospital bound. No longer handles money. No longer goes out unaccompanied. Humiliating, but her analytical mind became instantly skeptical of the actual relevance of this list to her individual outcome. How much of this list was due to the progression of Alzheimer’s disease and how much was confounded by the overwhelmingly elderly population it described? Were the eighty-year-olds incontinent because they had Alzheimer’s or because they had eighty-year-old bladders? Perhaps these 3s wouldn’t apply to someone like her, someone so young and physically fit.
The worst of it came under the heading “Communications.” Speech is almost unintelligible. Does not understand what people are saying. Has given up reading. Never writes. No more language. Other than misdiagnosis, she couldn’t formulate a hypothesis that would render her immune to this list of 3s. It could all apply to someone like her. Someone with Alzheimer’s。
2.Alice在自己家里无法找到卫生间而失禁。
3.Alice半夜在家中翻找东西吵醒了John，John质问的时候她连自己想找什么都无法想起。同理心在这种情况下能够实现吗？
4. John到最后去了纽约吗? 在陪Alice吃冰激凌的时候他说了一句：Take your time. 情感上说，觉得John应该留下陪伴Alice最后一个清醒的sabbatical year。
5.电影改编了Alice演讲稿的内容，渲染力要高于书。
书的结尾女儿在给妈妈念独白，然后问她听懂了吗？Ali回，it's love。
故事戛然而止，但疾病不会停止。生活也要继续。
感谢这本书让我认识了这种疾病。
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